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2001b). More collaborative approaches (A, C or E) require reviewers to work in dialogue with stakeholders at more than one point in the life of a review. As part of ‘advisory’ or ‘steering’ groups, stakeholders meet at several points with each other and the review team (face-to-face or virtually), discuss plans and progress, and help determine the direction at key decision-making stages. 2 Framework for describing stakeholder involvement in research agenda setting (adapted from Oliver et al. indd 29 Type G Type H 01/03/2012 10:29:12 AM 30 An introduction to systematic reviews around a group so as to promote discussion and debate about the particular review.
In the health sector such approaches are endorsed by the long-established World Health Organisation’s Declaration of Alma Ata, which states, ‘The people have the right and duty to participate individually and collectively in the planning and implementation of their health care’ (WHO 1978). Children and young people, who stand as an example of a group that is marginalised by society, have had their right to participate in all decision-making that relates to them recognised by all but two member states of the United Nations (UNICEF 2010).
This turned out to be a considerable challenge, especially for the students involved in the PSHE review, given the many competing demands on their time within the school day and over the school year. For the HIV review, a large amount of effort was put into preparing information for stakeholders before advisory group meetings, and in minuting and circulating discussions from these meetings. Again, stakeholders spent a great deal of time preparing for and attending meetings. In terms of influence, all three approaches allowed people other than researchers in the review team to have an impact on the final questions addressed by the review.